Presentation made by Renu Addlakha in the Panel "Focus on Health Issues and Challenges of Selected 'Socially Constructed' Vulnerable Groups" at National Conference on “Closing the Health Equity Gap in India: Transformative Research for Action” organised by Achutha Menon Centre for health Sciences Studies and Sree Chitra Tirumal Institute for Medical Sciences and Technology in Trivandrum (Kerala, India) during 8-11 January 2018.
A blind woman being carried on a bicycle by her granddaughter. Uganda has progressive legislation and many organisations, donors and projects supporting people with disabilities.
This is a trailer for a documentary about my research project on disability, embodiment, and virtual worlds, which will appear in April 2018. My co-researcher (Donna Z. Davis) and I have really enjoyed working with the filmmaker (Draxtor Despres) and a range of our interlocutors in Second Life on the film.
Throughout the world “Living with” guides are appearing aimed at persons and families who are coming to terms with a new diagnosis. Often prepared by patient or disease advocacy associations, these guides focus on the mundane, everyday aspects of adjusting to, coping with and getting on with the challenges that living with a particular disease can bring in its wake. It is never ‘only’ an individual who lives with a chronic condition, so do family members, loved ones, friends and others.
I call this photo “TWO RUDAKS” – it was taken at a cast party after a performance of my ethnographic play, I WAS NEVER ALONE at UC San Diego. In the play, the audience sits in the ethnographer’s seat, listening to life stories of six Russian people in their 30s living with disabilities.